Wexford mother hopes son’s story will raise awareness of rare genetic syndrome — ‘I’d like to change the world for him’

Wexford mother hopes son’s story will raise awareness of rare genetic syndrome — ‘I’d like to change the world for him’

Irish Independent logoIrish Independent

Sarah Mangan says more knowledge, earlier intervention and stronger support networks are needed after her son Robbie was diagnosed with Coffin-Lowry syndrome