WATCH: Longford siblings with rare disease who 'don't have time' issue HSE plea for drug

Liam and Kiara Lynch were diagnosed with Friedreich's ataxia (FA) in 1990 and 1997 Two North Longford siblings battling a rare, progressive neurodegenerative disease who are campaigning for access to life-changing treatment for them and 200 patients, have urged the government and drug manufac