'Ravaging my body' Longfordian's HSE plea to fund life-changing drug to treat rare disease
Longford

'Ravaging my body' Longfordian's HSE plea to fund life-changing drug to treat rare disease

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Kiara Lynch has been battling the 'relentless' Friedreich’s ataxia since the age of 13 Longford woman Kiara Lynch has clung to the hope that one day a treatment would become available and the HSE would fund that medication to treat Friedreich’s ataxia (FA), a rare, progressive neurodegenerati