Heartbroken father says he has ‘let his son down’ after HSE rejects funding for rare disease drug

A heartbroken father has said he feels as if he has let his son down after the HSE recommended against covering a treatment for a rare genetic disorder. Craig Coady lost his 13-yearold son Rory to Friedreich’s ataxia last September and his other son Paudie, 16, also has the condition. The family desperately hoped that […]